‘They entrusted me with their daughter’s memory’: Women’s prize winner Rachel Clarke on her story of a life-saving transplant

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‘They entrusted me with their daughter’s memory’: Women’s prize winner Rachel Clarke on her story of a life-saving transplant

The Story of a Heart, which won this year’s award for nonfiction, tells how one child saved the life of another. The author talks about the amazing families involved, campaigning for a better NHS, and how being a doctor frames the way she writes

To read Rachel Clarke’s The Story of a Heart, which has won this year’s Women’s prize for nonfiction, is to experience an onslaught of often competing emotions. There is awed disbelief at the sheer skill and dedication of the medical teams who transplanted the heart of nine-year-old Keira, who had been killed in a head-on traffic collision, into the body of Max, a little boy facing almost certain death from rapidly deteriorating dilated cardiomyopathy. There is vast admiration for the inexhaustible compassion of the teams who cared for both children and their families, and wonder at the cascade of medical advances, each breakthrough representing determination, inspiration, rigorous work, and careful navigation of newly emerging ethical territory. And most flooring of all is the immense courage of two families, one devastated by the sudden loss of a precious child, the other faced with a diagnosis that threatened to tear their lives apart.

To write such a story requires special preparation. “I was full of trepidation when I first approached Keira’s family,” Clarke tells me the morning after she was awarded the prize. “I knew that I was asking them to entrust me with the most precious thing, their beloved daughter Keira’s story, her memory.” The former journalist trained as a doctor in her late 20s, and has spent most of her medical career working in palliative care. Subsequently, she has also become an acclaimed writer and committed campaigner, publishing three memoirs: Your Life in My Hands, Dear Life and Breathtaking. She turned to her medical training for guidance when writing The Story of a Heart. “I said to myself, my framework will be my medical framework, so I would conduct myself in such a way that they would, I hoped, trust me in the same way that someone might trust me as a doctor. And if at any point they changed their mind, then they could walk away from the project.”

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By Alex Clark

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