Living with polycystic ovary syndrome can be difficult and lonely | Letters

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Living with polycystic ovary syndrome can be difficult and lonely | Letters

The NHS needs to provide better understanding and support for people with the condition, says one reader

Thank you for publishing the article about polycystic ovary syndrome (PCOS) by Charlie Brinkhurst-Cuff (I was diagnosed with PCOS – and was soon drowning in misinformation, 22 June). It resonated with my experience of diagnosis and frustration at the complete lack of support. I was first tested in my teens and told my blood test was normal. I was retested at 34 when I went to my GP about weight gain and struggling with exhaustion. When I was confirmed to have PCOS I was warned about the health issues, and told the best thing I could do was lose weight, even though this would be very difficult, and to come back when I was struggling to conceive.

Charlie is right: the amount of time and energy I had to put in to try to understand how to be healthy has been a huge drain. Especially sifting through the masses of misinformation. It took me two years and a lot of hard work to understand a diet and exercise plan that worked for me. It’s been difficult and lonely trying to navigate this on my own.

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The NHS is restricting access to obesity services across England, leading to patients in nearly half the country being unable to book appointments with specialist teams for support and treatments such as weight-loss jabs.

An investigation by the British Medical Journal found budget cuts to local services fell disproportionately on obesity care, with patients living with the condition often deemed less worthy of care than others.

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