BREAKTHROUGH CANCER PROJECTS AMONGST FIRST ON THE ISLAND TO ACCESS NHS DATA
Pioneering cancer studies, including one tackling aggressive bladder cancer and another enabling earlier diagnosis of lung cancer, will be among the first to benefit from research access to Wessex NHS patient data thanks to the new Wessex Secure Data Environment (SDE), a secure platform for storing and linking NHS patient data led by University Hospital Southampton. With cancer identified as the top area for research by over a 1/5 (21%) of people across the Isle of Wight, the Wessex SDE aims to supercharge current and future projects in this space by connecting researchers to more patient data so they can ask bigger questions and gain fresh insights to come up with new treatments and technologies. Despite being 1 of the 10 most common cancers in the UK, diagnosis of bladder cancer can often come late, particularly for women. Nearly a quarter (24%) of women and more than 1 in 6 (16%) of men are only diagnosed following emergency admission. Survival rates, as a result, are as low as 10%. Professor Simon Crabb from the University Hospital Southampton is leading the groundbreaking bladder cancer study which aims to facilitate diagnosis of high-risk and aggressive bladder cancer earlier, to improve outcomes. The study will review de-identified NHS data from bladder cancer patients from across Dorset, Hampshire and the Isle of Wight from the first visit to the GP through to diagnosis and treatment. Commenting on the potential impact of the project, Professor Crabb said: “Bladder cancer has a very high mortality rate for a UK cancer, particularly for women. It’s clear that late diagnosis impacts significantly on survival. By understanding when and how patients are diagnosed, we can re-write the rules and identify better processes for kickstarting testing and treatment. This will only be possible with access to data on the scale that the Wessex Secure Data Environment allows.” Melanie Costin, interim CEO of Fight Bladder Cancer, who was diagnosed late with bladder cancer says: “Every patient deserves the best chance at an early detection of this often neglected cancer. A secure way of accessing critical data could help identify the signs at a much earlier stage and improve the outcomes for bladder cancer patients and their loved ones. It could be a lifeline!" As more projects come on board, University Hospital Southampton (UHS) has been encouraging people from across the region to share their views on how NHS data should be used for research. When asked about the Wessex SDE, the majority (59%) of people from the Isle of Wight believe it should prevent avoidable diseases and reduce demand on the NHS in the future rather than developing treatments for people who are already sick. The new research is being released as the Wessex SDE issues a final call for people across the region to have their say on how NHS patient data is used as part of its ‘Improving Tomorrow’s Health’ campaign at WSDE - Have your say. Other cancer projects which stand to benefit from accessing people’s de-identified NHS data in the region include IDx Lung, the NHS Cancer Vaccine Launch Pad and the Cancer Genomics project. Anyone wanting to get involved with the Wessex SDE should go to WSDE - Home.
Continue reading this article about BREAKTHROUGH CANCER PROJECTS AMONGST FIRST ON THE ISLAND TO ACCESS NHS DATA
by @islandecho
NHS Forums - For daily discussion by NHS Staff.
Pioneering cancer studies, including one tackling aggressive bladder cancer and another enabling earlier diagnosis of lung cancer, will be among the first to benefit from research access to Wessex NHS patient data thanks to the new Wessex Secure Data Environment (SDE), a secure platform for storing and linking NHS patient data led by University Hospital Southampton. With cancer identified as the top area for research by over a 1/5 (21%) of people across the Isle of Wight, the Wessex SDE aims to supercharge current and future projects in this space by connecting researchers to more patient data so they can ask bigger questions and gain fresh insights to come up with new treatments and technologies. Despite being 1 of the 10 most common cancers in the UK, diagnosis of bladder cancer can often come late, particularly for women. Nearly a quarter (24%) of women and more than 1 in 6 (16%) of men are only diagnosed following emergency admission. Survival rates, as a result, are as low as 10%. Professor Simon Crabb from the University Hospital Southampton is leading the groundbreaking bladder cancer study which aims to facilitate diagnosis of high-risk and aggressive bladder cancer earlier, to improve outcomes. The study will review de-identified NHS data from bladder cancer patients from across Dorset, Hampshire and the Isle of Wight from the first visit to the GP through to diagnosis and treatment. Commenting on the potential impact of the project, Professor Crabb said: “Bladder cancer has a very high mortality rate for a UK cancer, particularly for women. It’s clear that late diagnosis impacts significantly on survival. By understanding when and how patients are diagnosed, we can re-write the rules and identify better processes for kickstarting testing and treatment. This will only be possible with access to data on the scale that the Wessex Secure Data Environment allows.” Melanie Costin, interim CEO of Fight Bladder Cancer, who was diagnosed late with bladder cancer says: “Every patient deserves the best chance at an early detection of this often neglected cancer. A secure way of accessing critical data could help identify the signs at a much earlier stage and improve the outcomes for bladder cancer patients and their loved ones. It could be a lifeline!" As more projects come on board, University Hospital Southampton (UHS) has been encouraging people from across the region to share their views on how NHS data should be used for research. When asked about the Wessex SDE, the majority (59%) of people from the Isle of Wight believe it should prevent avoidable diseases and reduce demand on the NHS in the future rather than developing treatments for people who are already sick. The new research is being released as the Wessex SDE issues a final call for people across the region to have their say on how NHS patient data is used as part of its ‘Improving Tomorrow’s Health’ campaign at WSDE - Have your say. Other cancer projects which stand to benefit from accessing people’s de-identified NHS data in the region include IDx Lung, the NHS Cancer Vaccine Launch Pad and the Cancer Genomics project. Anyone wanting to get involved with the Wessex SDE should go to WSDE - Home.
Continue reading this article about BREAKTHROUGH CANCER PROJECTS AMONGST FIRST ON THE ISLAND TO ACCESS NHS DATA
by @islandecho
NHS Forums - For daily discussion by NHS Staff.
